Saturday, May 29, 2010

Yesterday I took Julie to the doctors office for her second round of interferon. She has a rare condition called Lymphangiomatosis and there are cases where this medicine has stabilized and even regressed the problem. But it is mostly a shot in the dark still because there are very few cases in the world. We will just have to try things out and see. If something like this doesn't work we may have to resort to surgeries which will only fix a few of the problems associated with the condition and not the underlying problem. Her condition causes the lymph vessels to grow out of control and, in her case, causes fluid to build up in various places in the body. Her left arm, leg and foot are always swollen. Her heart and lungs both have fluid around them and it could be drained but it will just come back. that is unless she has the surgeries a lot of doctors recommended like taking out the lining of her heart and lungs. But then the fluid would find somewhere else to build up. The hope is that the interferon will stop the fluid building up anywhere. And in at least one case it even allowed the body to process all that extra fluid naturally so no draining was necessary.

Ok so that is one thing on my mind today. Another thing is that my brother just had his second son today! More precisely about one o'clock this morning. Aidyn Monty Cargile, welcome to the outside world! I'll be seeing you later today.

Now on to enjoy the day. No school for Harley and no doc visits till next friday so I am going to chill!

No comments:

Post a Comment